u/Basketweave82

Anyone with CKD supplementing B12?

I have early stage CKD (creatinine stays around 1.4) on no treatment. I don't have any symptoms either.

Diagnosed with PA. I started with sublinguals 1500mcg methylcobalamin. Only took this for 6 days but my pee got really smelly and urinary frequency increased. Also made me shaky and jittery.

Is it possible for this to be from the B12? My injections are still being delivered (hydroxo) so I'm wondering how I might react to them.

My nephrologist has gone out of town for a month so I'm left on my own on this.

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u/Basketweave82 — 4 days ago

I took 3 methylcobalamin injections 2 years ago and they gave me panic attacks where I felt I was dying.

I have early CKD with always elevated creatinine. I just read that cyano involves the kidneys? Is this true?

I also have an enlarged heart muscle (HCM) and am on anticoagulants (Xarelto) for life after a pulmonary embolism.

I went to a doctor and they said I "could" start methylcobalamin injections. Just once a week. Take 2 and see how it goes. But he didn't listen when I said they didn't suit me.

Which form is safest for a person like me? I'm getting no support from doctors and family thinks it's all in my head as well.

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u/Basketweave82 — 11 days ago

Please clarify what it means. Do I first get B12 levels up? Do I take lesser folate than usual?

I asked AI again just to be sure and it gives the same reply - not to take folate till B12 is up. Help?

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u/Basketweave82 — 14 days ago