Need guidance on diagnosis and whether move to biologics or stay with Azathioprine
Hello everyone,
My name is Basavaraj Ganjagol, I am from Karnataka. 26 Years/Male.
I have been diagnosed with *Behçet’s disease*
My current symptoms are quite severe and affecting multiple systems:
- Intestinal involvement: ulcers, bleeding, abdominal pain ( worsens after eating)
- Severe rectal pain + cuts and ulcers at anus mouth with occasional swelling
- genital lesions painful
- Nose pain and redness and oral ulcers
- eye burning and redness and pain
- painful lesions on tongue and frequent painful lesions on lips
- Intermittent fevers and severe chills
- bodyache
- Painful skin lesions on back thighs hands chest
- Painful defecation with poor passage of stool, incomplete evacuation, and frequent urge
- Severe joint pains(sometimes not able walk or stand)
- joints include knee , wrist , shoulders , finger joints
- Spinal cord/back pain( pain starts with lower back and radiates to entire spine and then pain in neck and shoulders and back head)
- Severe headaches & migrain
- Trigeminal neuralgia (facial nerve pain)
- Increasing weakness and fatigue
- significant weightloss
- Poor response to steroids (currently on Omnacortil 20 mg)
At present, I'm on *Omnacortil tapering dose and Azathioprine 50 mg*
I am looking for guidance on:
Is this diagnosis is confirmed or do I need to go more deeper with more experienced doctor ?
Whether my symptoms suggest need for early biologic therapy
Any advice for managing bowel symptoms and diet during active disease
Experiences from patients with similar neurological symptoms (like trigeminal neuralgia)
I would be very grateful for any guidance, doctor recommendations, or shared experiences.
Thank you 🙏