r/Behcets

I have a very severe case of Behcet’s effecting most organs and I started Cyltezo which is a biosimilar of Humira 6 weeks ago. I’ve done 4 injections so far and all my symptoms have been amplified, no relief with anything. My doctor put that I had RA to get it approved through insurance since it’s not a conventional treatment for Behcet’s. I asked her about starting with a loading dose but she refused and said my insurance (Cigna) probably wouldn’t cover it. How many of you are in the states and started with a loading dose higher than 40mg? Did the insurance give pushback on it?

Hat jemand Otezla wegen Morbus Behcet verschrieben bekommen? Und welche Erfahrungen habt ihr damit gemacht (Wirkung, Nebenwirkungen)? Ich habe bis jetzt Colctab genommen und soll bald auf Otezla umsteigen. Nur mache ich mir Sorgen wegen den Nebenwirkungen, da ich schon mal wo gelesen habe, dass vor allem die Anfangszeit hart sein soll.

I have had multiple episodes of anaphylaxis and the doctor is considering MCAS or a food allergy to be the cause. Curious to know if anyone else with Behcets is facing this.

Hi All, I wanted to ask how to best keep the sores at bay. Do you start taking Prednisone immediately right after you start feeling a few lesions/sores popped up in your body like one or two canker sores inside the mouth? I dont want the lesions to become full blown all over my body as you all know it hurts like hell. I was wondering if immediately taking Prednisone will prevent it becoming full blown. Also please share what else do you do to keep it at bay?

Thanks for the advise and support.