I had a meeting scheduled with OSD, my first intake appointment as an incoming student. It was supposed to be today, I joined the meeting on time, no one showed up. I’ve waited 20 minutes after the scheduled appointment time and the meeting just never happened.
They were stressing how important it is we get set up with OSD asap. So I did, but now I’m going to have to reschedule. Is this common? Is this what I can expect from OSD? Sigh
I was diagnosed with POTS over a year ago. Since then I’ve been on multiple medications (fludrocortisone, metoprolol were 2 I tried and stopped). I’m currently on midodrine and ivabradine. I’m 20F.
My cardiologist is at the point where he’s saying he can’t help me any more than he has. I saw an endocrinologist and he said he has no idea what to do. My PCP just retired but he wasn’t helpful before either.
I used to have heart rate spikes so bad, that I would consistently have jumps from 70-80bpm sitting to 170-190+ bpm when walking. Walking isn’t better for me than standing like it is with some POTS people. The more I have to move, the more my body hates it.
Now that I’m on medication my resting heart rate is 55-60bpm on average. Then when I stand my hr goes to 100-130 on a good day, and when I’m walking it’s up to 140-160 or higher without fail.
I drink liquid iv every day, use compression socks and abdominal compression, do seated exercise (but only before bed because it’s exhausting), get 8 hours of sleep every day. I have a disabled parking placard. I used to use a cane, but I felt too embarrassed. I have a wheelchair but I still live with my parents and my mom harasses me about it, saying I’m “disabling myself”.
I guess I’m just feeling like there’s no hope for me. That even if I do everything right and even on medication, there is no way to stop my body from freaking the fuck out the second I have to move. Even on medication it increases by 50-100 bpm like clockwork.
I dream of going on hikes
I just had some guy flaming our whole team in match. He invited me to a group after the match was over (obviously to harass me) and I declined, and then a second pop up appeared immediately after asking me if I wanted to block and report him.
I think this is really cool honestly! Is it new? I have never seen it before.