u/AirportOutrageous106

▲ 1 r/MSPI

Amino Acid Formula Not Working

Has anyone moved off of an amino acid formula and back to breastmilk (without an elimination diet)? Simply because the AAF doesn’t seem to be working after 4wks and before, despite a few specks of blood in the diaper, baby was happy healthy sleeping through the night and gaining weight on breastmilk.

I’ve done enough research to know some doctors treat the diaper vs treat the baby. I’m just looking for advice if anyone has made it through to the other side without an elemental formula. We have tons of frozen breastmilk stored none of which is dairy, soy, egg or peanut free but otherwise a very healthy diet.

For reference, baby is 20wks. Started Neocate Syneo at 16wks. Hates it. Reflux is worse. Now waking up in middle of night to eat.

reddit.com
u/AirportOutrageous106 — 6 days ago
▲ 1 r/MSPI

My baby just turned 4mo and has been on Neocate Syneo for a little over 3wks now. She was exclusively on breastmilk but had specks of blood and mucus in her diapers pretty much since birth. Her pediatrician was fine with it as she was gaining weight and happy. We eventually sought out a second opinion from a GI who was so quick to say it was CMPA and put her on neocate Syneo from the start. Up until 5 days ago we’ve still seen specks of blood in her diaper and mucus too (I guess it can take up to 4-6wks to see improvement). My question for anyone else who’s been down this path is… are these diapers normal?? It still looks to me a bit like a breastfed baby diaper but more dark/green black specks. Is this possibly from the pre/probiotic blend in syneo? We are heading back to the GI this week but looking for some advice on what’s ‘normal’

u/AirportOutrageous106 — 12 days ago