u/AfternoonHot9276

▲ 7 r/braintumor+2 crossposts

Help‼️need cost estimates for glioma radiation and chemo in Hyderabad,India

Hi all , for context , My father (55M) got diagnosed with glioma on left parietal lobe (speech area of the brain) this May 7th . As it is a little sensitive part of the brain , they will not remove whole tumor , will only remove as much as they can. So after that we will have to continue with the chemo and radiation after biopsy.

So as I’m from India , HYDERABAD, would like to know cost estimates of the later process.

Have met few amazing people here , sadly have gone through the same ( breaks my heart , nobody deserves to be in the first place) have given me some estimates for the treatment , mostly of proton therapy, as Hyderabad doesn’t have proton therapy, would like to know what kind of treatment/packages were suggested to you all by your oncologists for the GRADE of tumor and no of cycles , type of radiation and COST ESTIMATES too. I know these treatments costs a fortune , so would like to know and compare from all kind of hospitals and we can choose accordingly. Want to be prepared.

Few of the people who also searching for cost estimates , here are few roughly

  1. Apollo proton therapy costs around 18lacs with some additional charges as per our stay and recovery.
  2. For tumor surgery, the hospitals we have visited said 6-7 lacs standard and if any complications, might cost more further.
  3. Few people I’ve talked to here said in few of the hospitals they visited surgery has been done in around 4 lacs and radiation and chemo too approx the same
  4. In govt hospitals it would be around 1-2 lacs

Note: I might have mixed up few numbers as I text multiple people for details and suggestions everyday.

This sub helped me a lot till now emotionally met amazing people here and also with suggestions and opinions and there might be few more people looking for the same answers so giving it back In the hope everyone fights this much stronger.
(Also Writing these distracts me a little from the reality and also make me cry)

reddit.com
u/AfternoonHot9276 — 15 hours ago
▲ 8 r/braintumor+1 crossposts

Urgent ‼️ Need help/second opinions for left parietal lobe tumor case

Hi all , need help in with your opinions for this particular MRI scans. Please don’t ignore it

My father (55M) got diagnosed with a left parietal lobe lesion. He showed no other symptoms other than speech difficulty like
1.slurring of words ,
2.forgetting spellings
3. Mixing up words
4.not able to communicate properly in 2nd and 3rd languages

Yet to get more clear picture on it. Since he got diagnosed this week our whole family shattered. We are trying to hold it strong. Me and my sibling are constantly putting up these Reddit posts so we can get a better picture and bestt doctors as much we can.Please help us out.

Now my father is on dexa 8mg 2x per day and Levipil

He’s also diabetic and has high bp. Has history of smoking and drinking too. What shattered us is his liver and blood reports always come clean but this brain tumor was NEVER expected . If you all can help us in any way possible with opinions and suggestions everything is welcome.

So please look into these mri reports and let us know your thoughts

Also if anyone from India , Hyderabad and knows best neurosurgeon for brain please let us know

u/AfternoonHot9276 — 4 days ago
▲ 10 r/AskDoctorsIndia+2 crossposts

URGENT ‼️ HYDERABAD people please Help with the best neurosurgeon

My father was recently diagnosed with a brain tumor in the left parietal lobe, and the past few days have been extremely overwhelming for our family. We’re currently consulting multiple neurosurgeons to get second opinions and understand the best path forward, but I also wanted to hear from people who may have gone through something similar.

Some doctors are recommending a biopsy first, while others are suggesting going directly for surgery and doing the biopsy during the procedure itself. We’re trying to understand the different treatment options and types of surgeries available, along with the pros and cons of each approach.

His symptoms started with speech and language related issues such as:

  1. forgetting words
  2. stuttering/slurred speech
  3. forgetting spellings
  4. spelling or saying words incorrectly

At the moment, he’s taking:

  1. Dexamethasone 8 mg twice daily
  2. Levetiracetam 500 mg twice daily

While I found amazing people (they are really amazing and helped me cope with this uncertainty mentally) on this sub from different states and got cost estimates , right now need more inclined towards Hyderabad best neurosurgeons who’s specialisation is on brain tumors. Everyone we know are suggesting doctors who have specialisation on spine but not on brain. I wanted to post this on HYDERABAD sub but couldn’t because I have less karma on Reddit ( as I was always a silent one on this used to find my self on competitive exams subs but this change in life has brought me here and unfortunately for being silent on Reddit costed me by not being able to post on few subs) So anyone who know THE BEST DOCTOR and which HOSPITAL they are from in Hyderabad that would help us a lot.

reddit.com
u/AfternoonHot9276 — 4 days ago
▲ 5 r/braintumor+1 crossposts

Any Hyderabad people or any Indians please HELP , very URGENT

Hi everyone

Urgently required best suggestions for THE BEST DOCTORS in HYDERABAD Neurosurgeon for brain tumor (not sure if it is tumor or infection or something so need to do biopsy but the tumor is in speech area so the operation must be accurate we cannot afford a trail and error doctors. Need the BEST DOCTOR ) PLEASE HELP with the requirement

Need suggestions

The patient has no other complications due to tumour except for the speech difficulty and one of the doctors we consulted immediate surgery and robotic so need second and third opinions as well.

Even if you have OTHER STATES suggestions are also welcome.

If anyone have questions so if you can suggest accurate doctor , please do ask . But please don’t ignore.

(I know I’m not much active on Reddit hence the less karma but please don’t ignore , it is much required)

reddit.com
u/AfternoonHot9276 — 4 days ago
▲ 5 r/AskDoctorsIndia+1 crossposts

URGENT ‼️ NEED SUGGESTIONS FOR BEST NEUROSURGEON FOR BRAIN TUMOUR SURGERY IN HEDERABAD

Hi everyone

Urgently required best suggestions for THE BEST DOCTORS in HYDERABAD Neurosurgeon for brain tumor (not sure if it is tumor or infection or something so need to do biopsy but the tumor is in speech area so the operation must be accurate we cannot afford a trail and error doctors. Need the BEST DOCTOR ) PLEASE HELP with the requirement

Need suggestions

The patient has no other complications due to tumour except for the speech difficulty and one of the doctors we consulted immediate surgery and robotic so need second and third opinions as well.

Even if you have OTHER STATES suggestions are also welcome.

If anyone have questions so if you can suggest accurate doctor , please do ask . But please don’t ignore.

(I know I’m not much active on Reddit hence the less karma but please don’t ignore , it is much required)

reddit.com
u/AfternoonHot9276 — 5 days ago