What advice and resources did you wish you had known when you started caretaking?
I've had a few other somewhat related posts saying that I should post here. I agree that I need to be figuring out other people's experiences and what's normal but I don't even know what to ask first. I have hundreds of questions and concerns but obviously can't write them all down at once. My mother had been unable to hold a job for the past two years after years in proposal management for large companies. Then displayed poor judgement and got caught up in a romance scam around last June/July. I wasn't aware until September. By December her money was completely gone. She moved in with me and my husband in January to get back on her feet. It soon became apparent that she will never live independently again and we became caretakers. She has no money, no assets, no retirement and debt from taxes, car payment and I'm sure other shit chasing her down.
We don't even have a diagnosis yet beyond reoccurring TIAs (mini strokes) that most likely have caused vascular dementia. We still don't know why the TIAs are happening but they've been happening for a while and the damage is permanent already. Now we have to try and stop it. My life is full of doctors appointments, talking with doctors, dealing with insurance, and the news keeps getting worse and worse.
I'm pretty sure she is in the early stages of dementia (trying to get into a neurologist but the referral process with metacaid has been a shitshow). She is still mostly independent in our home. Yet has weird obsessive behaviors, the same conversations, speech issues, and struggling with tasks she used to know how to do.
I feel like my entire day (I work from home a lot) has now become telling what to and what not to do. She has a lot of anxious energy and behavior. It's affecting me, my husband, our pets and our lives.
She was a good mother who tried her best. She had a really terrible life from the time she was a kid and now it looks like it will be bad until her death. My heart is breaking for her. We are all scared, sad and struggling. I'm sure I will be making a lot of posts asking how people handle this and that eventually.
Yet I want to start with, what info have you found the most useful? Books, podcasts, tips and advice? Anything from when you started caretaking. I want to learn, how can I help our lives run smoother?
Currently we are going through all the doctor stuff for her. She has metacaid and snap benefits. We are starting the process for disability. We are trying to figure out POA and if that is worth it or not.
We don't have a lot of money ourselves and are recovering from a bankruptcy that was finalized in November. We also are trying to start a family. So we are trying to find as much government help as we can.
We feel beaten down and broken and we are not even that deep into it yet. I'm grieving for the mother I knew while also having anticipatory grief for how bad it will be, that I'm just going to watch it get worse and worse. I'm going to watch my mother get taken from me.