u/Additional-Bat5699

Hi everyone. I’m from Brazil and I live with Stiff Skin Syndrome, a condition so rare that most people have never heard of it.

It affects my body and daily life in ways many people don’t understand. Because of that, I decided to make a video sharing my experience and explaining what life is like with it.

I hope it can spread awareness and maybe help someone feel less alone.

Here’s the video:
https://youtu.be/ymlOwXkYeEQ?si=2le93PTwKvFCWOmG

I’m happy to answer questions too. :)