u/Acrobatic_Welcome_30

The radiologist's comment at the end was "consider adenomyosis" The ObGyn basically just said to me that if the radiologist said that then there is a strong chance it's the case. I realize ultrasounds for adenomyosis are not definitive. I've actually had a bazillion MRIs and CT scans for other reasons (formerly had colon cancer in 2017). But none of those say anything about my uterus other than no cancer (of course biopsy is the standard there and I have had that too).

Pasting in below my ultrasound results. I had 40 days of bleeding but I am 52 and had never had anything like that before and my periods are not what I would describe as painful. However, I have severe pain from neurosurgery and the brain can only pay attention to where our pain is highest, so I might just not recognize period pain.

I do have a lot of bloating for a tiny person and urinary urgency and constipation...but these can be from scar tissue from colon surgery)

Am now on 100mg progesterone bioidentical and no problems since, even with a tiny dose of estrogen as well.

So the cyst seems small and incidental to me....I'm wondering what besides that made this radiologist suspect adenomyosis?, outside of my symptom of the 40days of bleeding...which did stop on its own.

Uterus Size: 8.4 x 3.1 x 4.0 cm

Myometrium: Homogeneous with no focal mass.

Endometrium: 14 mm in thickness. There is a 0.5 x 0.3 x 0.4 cm cyst within the endometrium of the lower uterine segment

Cervix: Unremarkable.

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u/Acrobatic_Welcome_30 — 7 days ago

Hi all - while imaging is not entirely definitive on this, the imaging I have had done suspects it. Are any of you in the same shoes, and have you still used both progesterone and estrogen HRT? As the condition is spurred by estrogen - that is the question. I do not do well on progesterone only - usually have to counter it with sone estrogen.

I do have a whole medical team & will be getting three opinions - but curious for anyone to comment who has been told they likely have it - and what you have then been told insofar as your HRT goes (the obvious wld be progesterone only - but estrogen has other health benefits so!!

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u/Acrobatic_Welcome_30 — 12 days ago

They suspect from ultrasounds and some symptoms that I have adenomyosis. I see on ultrasound that my uterus was normal size though.

Many of my symptoms are around bloating, bladder issues, constipation.

Can a normal size uterus really be causing those symptoms (I have GI been through colon cancer so my bases are covered in terms of other causes) - but I am just like, if my uterus is normal size then I would not think it would be causing the above.

I am 52.

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u/Acrobatic_Welcome_30 — 13 days ago

I weigh 110 and will be the only person on the bed for the next two months. After that, renters come in for 6 weeks in summer and I will have to give up the bed to them :(.

I have seen it is considered fine to sleep on the mattress even hours after unpacking it (Leesa website says this) - but any other thoughts here?

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u/Acrobatic_Welcome_30 — 13 days ago
▲ 5 r/SSDI

I did google this, but wld love a very simple explanation since I am not versed in IRS oriented anything. I was (so thankfully) approved last week. I will be getting a fair amount of backpay and I hear that is taxable.....but then maybe it would not add up to actually being taxable because I will never have been over 25K for any of those past years or the current one. I am a little confused and wonder if I am oversimplifying this. I am not married and have no other sources of income. I have been living with my 80 yr old parents since this all happened & am thankful I have had a home an food with the many years this took.

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u/Acrobatic_Welcome_30 — 13 days ago

I do not want a 2" topper - am aware that these exist many places. 1.5" is as thick as I want as I am very thin and thicker ones were too bouncy for me without pressure relief (I tried two different ones in my past, both 2" with different firmnesses - tried both soft and medium...soft was too soft and medium was just bouncy with zero pressure relief for me). Not a fan of memory foam....too much sinkage. Considering this Saatva one at 1.5" talalay or I will just use wool (literally costs more than my mattress though)...or a good down or fiber topper). I like a very firm bed and have one, just needing more pressure relief for shoulders especially.

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u/Acrobatic_Welcome_30 — 16 days ago
▲ 2 r/SSDI

Always grateful for the knowledgeable folks on here. I was approved last week after the usual long process. I had a life disabling neurosurgery in 2020. Because the physicians do not want to admit to their errors (in the surgery) it is basically presented in my file as though my problems are solely from the massive injury that led to the ER surgery (I know this is not true but that is another story!). And from an entire spine full of multiple issues.

My question is that since I have nerve damage or as they call it Post Laminectomy Syndrome (I got worse from my surgery, not better), no surgeons nor any other specialists have anything further that they can do for me...I did all the things. Everyone put me back to PCP to Rx the meds as pain medicine in my state does not Rx meds (they only do procedures like ESI and spinal cord stimulators). I saw countless surgeons, neurologists, pain medicine doctors before getting approved. I had a 2300 page file. I was only seeing all those doctors because I was in so much pain (still am of course) and I was hopeful there might be something they could do where the benefit would outweigh the risk. But that is not the case.

At this point, there is no reason to keep going to any of those specialists - they cannot do anything for me and in my state (which as some of the best medical care in the country) these specialists are overloaded and they do not want to see patients to "check in". You only go if you have a NEW problem. So basically, from here out, it is me and PCP who is Rx'ing my meds, unless my situation gets even worse and I need to see specialist again.

I am simply worried ion the case of the CDR? Thoughts? - as I stated, for spinal degenerative situations, neurosurgeons and neurologists in my state don't see you unless there is a new pressing issue or a significant further worsening of condition. So it's no up to me about seeing them....unless I were to lie and say my condition was worse just to get an appt...and that is not something I would ever do.

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u/Acrobatic_Welcome_30 — 17 days ago

Those of you who are knowledgeable, of these two options above, which do you think would have better long term support? ie how well will the mattress hold up over time in terms of supporting the spine? Thank you!

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u/Acrobatic_Welcome_30 — 17 days ago