u/According-Effort-317

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So on Feb 17th I noticed a small "rash" on my feet/legs, took a picture, then forgot about it as I tend to get random "rashes" that go away.

Turns out it's petechiae. It would go away and come back worse from February 17th to beginning of April.

I seen my primary Dr and they were unsure. I got into a dermatologist on March 23rd who mentioned vasculitis and pigmented purpuric dermotois but wanted to check my platelets, I went and got the CBC and it only showed a few abnormals that are normal for me and also high Eosinophils which is new.. she diagnosed as pigmented purpuric dermotois and was unsure why Eosinophils were high but what she was looking for was fine to call back if it doesn't resolve.. (my primary ended up testing for parasites and it was negative and just said we would keep track of CBC) a couple days later the petechiae came back worse, including swelling in my feet and ankles. I called dermatologist and they decided to refer me to vascular surgeon. I just seen him, and he said it's a rheumatologist issue and dermatologist should of done biopsy while petechiae was present.. my legs have been clear since the swelling flare but I do feel weird sensations of soreness in my legs... he said to call dermatologist for biopsy if it comes back, and if vasculitis they can send to rheumatologist for treatment etc... I ended up asking my primary doctor to send me a referral to rheumatologist as I also do have HSD/HEDS and used to see one.. he ended up calling me and saying I do not need a rheumatologist, that I'm fine, and he only went along with dermatologist sending me to vascular to ease my anxiety, I just have pigmented purpuric dermotois like dermatologist originally diagnosed me with... I told him dermatologist is the one who sent me to vascular and he said he knows and stop wasting my money on all these doctors... I have insurance that literally rarely denies anything...

I've had no recent med changes, no changes in anything in home, ECT.. most recent sickness was October with lymphagitis from a cat bite where I was hospitalized but even vascular said unlikely to be related.

I have HSD/HEDS, POTS, GERD, chronic inactive gastritis with intestinal metaplasia, and occasional high BP.

24 yr female.

u/According-Effort-317 — 8 days ago

Hi, I was wondering if anyone has experienced anything similar and may have some advice!

I was Previously diagnosed HSD/HEDS, POTS, chronic gastritis and intestinal metaplasia. I'm 24 year old female!

Not looking for a diagnosis, just seeing if anyone has experienced similar! My dermatologist mentioned vasculitis!

I Started experiencing petechiae on my feet/legs in February as a small light area, then I've had it on and off since and worsening, seen a dermatologist who diagnosed with pigmented purpuric dermotois, until my most recent flare shown, swelling, tingling/burning. She is now referring me to vascular... I have an appointment next week!

Legs are currently clear, although I've been having more joint pain in my ankles than normal, and some soreness/ weakness in both legs!

it's petechiae/bleeding under the skin!

My main worry is it will just continue to come back worse!

Recent CBC included, my eosinophils are pretty high! My primary had parasite testing done and it's clear! He said we would jus keep track! No new meds or allergies!

u/According-Effort-317 — 15 days ago