u/ASAPVincey

Im a Male, diagnosed with cHL stage 2BE with many risk factors and huge mediastinal bulk, in February. I’m currently on the BrECADD regime, planned to do 6 rounds of it as my first line treatment.

I’m currently on round 4 day 15 so 2 more rounds to go and I don’t know how to describe this but I just can’t do it anymore. I mean I probably can but I’m just so scared, unsure, worried, afraid, idk. It’s just so many thoughts and things that keep me up at night and let me feel so down to the bottom.

On of them is the fear of the last 2 rounds in general.
I really want to crush this thing. I want it to be over but I’m so scared of the chemo and what I could do to me. In round 2, I noticed very strong heart palpitations and extra systoles for example.
They got checked multiple times and I got told that that my heart is alright but they are still coming back every round and I always think I die when they do. I never experienced stuff like this and also never heard people dealing with stuff like this..

Then there’s also the infusion days, specially day 2. every time on day 2 after the infusion, I can’t move.. I lay down at home and just fight through the hours because the next morning is the time where it’s mostly better..

I’m also so scared that this stupid cancer isn’t gone in the pet scan after the 6 rounds. My scan after 2 rounds showed a mass reduction of roughly 70% and the SUV score went from numbers like 16,3 to 3,1 and 2,7.
There was one spot, my thymus, where it was at 16,8 before treatment and after 2 rounds it was at 3,4. my liver level was at 3,3 so because of the 0,1 over liver level, I got the 6 rounds instead of 4 I think..
I just hear so many people being done after 4 rounds or having a scan after 2 rounds that shows complete remession and I just ask myself what went wrong with my case? Why do I need to do 6 rounds…
I’m so scared that this thing isn’t gone after the 6 rounds.. I want my eyebrows back, I want this treatment life to be over but I’m also so scared that i can’t handle 2 more rounds. I really don’t know how to view this.

If I had some kind of proof that the treatment is indeed still working or a hint that I will be over after 6 rounds, then my mental strength and my power would probably come back and make it a bit easier to handle the 2 more rounds.. but I just don’t know anything and that freaking kills me.

I hope this post is slightly understandable. I just talked my head out and also being from Germany doesn’t make it more easy..

Im 21 years old and got diagnosed with stage 2BE cHL in February. I’m currently under the BrECADD regime for my first line treatment.

My tumor and the three active spots it had, showed a SuV score reduction from 16,3 - 16,1 - 15,7, to
3,4 - 3,1 - 2,7 and a mass reduction of 67,2%, after two rounds of BrECADD.

My liver score was 3,3 so because of the one being 3,4 so 0,1 higher, they wanted to give me 6 rounds instead of 4.
Round 5 starts in a week and man I really can’t do it anymore.

All of these weird side effects really start to get to me and my only problem is, that I can’t rest on the thought that it will all be over soon because will it be???

I’m really scared that the pet scan after all 6 rounds will not show a complete remession.. I don’t know how likely it is or what even is going on in my mind.. I don’t know what I will do if it isn’t clear, I don’t know anything. I just want this to be over…

I got diagnosed with stage 2BE classic Hodgkin’s lymphoma back in February.

I’m currently getting BrECADD as my Therapie.
My pet scan after two rounds, showed a mass reduction of about 70% and the SUV score went from: 16,2. 16,0. and 15,7
To: 3,4. 3,1. and 2,7
In the three areas that I have.
That means my deauville Score of these three spots was 4, 3, 3.
My liver level was 3,3 so the deauville score of 4 for the one spot is only there, because of 0,1…
My doctor said that this is very pleasing for him and that it’s also not uncommon to not be fully negative after two cycles, if you have a big bulk like I had (14x7cm).
Is that true?
He also said that he would like to give me the full 6 rounds just to be sure..

I’m currently done with round 4, looking forward to round 5 and I’m feeling very scared? I guess?
I’m scared that the pet scan after the whole 6 rounds will somehow still show activity or even growth again. I just want this shit to end man.. the treatment is slowly also getting to me..

How safe am I that the scan in 2 rounds will be good? How likely is a relapse? I just want this to end..
Anyone else with similar outcomes?

I got stage 2BE Hodgkin’s lymphoma. My Therapie is BrECADD and I’m currently on round 4.

My pet scan after 2 rounds showed a mass reduction of 67,2% and the SUV max score of the three areas in my chest, went from 16,2 , 15,3 and 16,0 to 3,4 , 2,7 and 3,1.

My liver score was 3,3 so I was 0,1 above my liver which gave me a deauville score of 4 and that gave me 6 rounds in total to do.

I experienced some extra systoles during my 2 round on day 8 and then again on my 3 round at the same time around day 8-9.

I went to the ER both times and they told me my heart is healthy and that the extra systoles were benign.

They gave me a beta blocker and the extra systoles got much less but

I’m so scared that they will return in the next 3 rounds of chemo tho. After they showed up in the second round for the first time, they were completely gone when round 3 began. Now they are still there even tho round 4 began today.

I’m like so scared that some of these side effects will kill me. Especially the extra systole one.. I’m just so scared of death and all and it’s so hard to manage. I’m 21 years old, male.. and don’t know what to do.

I’m so scared of so many things. I’m also scared that the last few cycles will not hit the cancer cells and that the pet scan at the end will somehow show growth again.. I really don’t know what to do. I don’t know how I will manage the rest of the rounds with these thoughts.

My mind is all over the place and I feel like my anxiety and the stress it gives me, only makes all of it worse…