r/otosclerosis

Hi all,

So I (21F) got diagnosed with oto around the start of this year and have been wearing hearing aids ever since (i love them alot!) And personally, having hearing aids doesn't bother me. I know sign language and live and work in the Deaf community so its not out of my world anyways, unlike a majority. However, my surgeon told me that if I wanted surgery in the future it may be possible it spreads to the cochlea and a cochlear implant may be a solution. I'm absolutely terrified of it spreading to my cochlea as there is no way I could be a sign language interpreter with that level of loss.

Has anyone here experienced this? Is there any way to prevent it or slow down the growth?