r/crohns

Hello. I was diagnosed with crohns Sept 24. I started a regimen of Avsola, which has been working great. In Jan, I had left-hand CMC thumb arthroplasty, followed by the right hand in March. GI did not want me to have any infusions during this time due to the surgeries. So, I am way overdue for my next infusion (it is scheduled next week). This is the frustrating part....I had a BAD FLARE this past week, and I am still so exhausted from it all.

My husband and family are supportive, but THEY CANNOT RELATE, so I feel like they do not want to listen to me complain. I realize they cannot fully understand the gravity of this diagnosis, but that does not help validate my feelings. I do not think they mean to be like this, and maybe some of it is me projecting onto them.

How do I get through this? I need to vent and help people understand that during these flares, I feel like doing NOTHING. I am usually very energetic and motivated, and I love being active, so maybe this is new to them. My family does pitch in around the house, so I cannot complain. I just wish I had someone to commiserate with. I am extremely emotional this week cause it has really taken a toll on me.

Does anyone feel the same way? I feel that posting in the group may make me feel better, cause I am sure I am not alone. THANKS:)

Hi everyone,

I’ve been dealing with bowel problems for years (since before 2017) and it’s starting to really affect my daily life, so I wanted to see if anyone has experienced something similar.

My main issue is that I alternate between constipation and diarrhoea. I’ll often be constipated for a few days, then suddenly get intense diarrhoea where I might go 5–6 times in an hour with strong urgency. I’ve even had one episode recently where I didn’t make it to the toilet in time.

I get quite a lot of symptoms with it:
- Cramping pain (mainly lower left and low centre of my abdomen)
- Bloating and very loud gurgling
- Nausea
- Sweating and feeling a bit dizzy during episodes

The pain usually improves after I go to the toilet.

My stool varies a lot in colour (often dark green or yellow) and sometimes has mucus, but I’ve never had blood. It can also occasionally wake me at night (maybe once a month).

I had my gallbladder removed in 2017, but these symptoms actually started before that. I’m also on Wegovy, but my symptoms were the same before starting it.

There doesn’t seem to be a clear food trigger – it happens regardless of what I eat. Sometimes I end up avoiding eating when I’m out because I’m worried about needing the toilet urgently.

My GP has started tests (bloods and stool samples), but mentioned it’s likely IBS.

Just wondering if anyone has had a similar pattern or found anything that helped?

Thanks in advance 🙂

We are having to face the reality that our child will soon need scopes due to extremely high inflammation on fecal tests. I am dreading the clear liquid diet just as much or more than the bowel prep. I've seen some prep protocols say to give a light breakfast the day prior to the scope and other protocols say nothing is allowed at all. I'm not sure which will be easier on him. I know once I eat breakfast it kicks my metabolism on and I'm hungry more than when I skip.

My child likes to eat, he's very active and healthy (we thought) and loves food. He doesn't normally have diarrhea but I know to use barrier cream prior to the bowel prep and after each toilet visit. I can honestly deal with poop stuff but it's very emotional for me to think about hearing my child crying because he can't eat all day and I just dread that. We will also be hours away from home and in a motel during the prep time. We will have limited amount of toys and home comforts but we will pack as much as we can.

We bought some jello, something he normally doesn't care for or eats, just to try to start working on it being an option for that day. He normally lives on water for fluids and doesn't drink much else aside from almond milk which isn't clear. So I'll be buying juices and broths. But I'm mostly looking for your experience on how your child handled the whole prep day, what you wish you would have done differently, tips or tricks, Etc.