I currently see a NP and I absolutely loved her, but my Schizophrenia got worse and it's treatment resistant. She has kinda dipped out on me. She thinks my emails and calls are annoying. I try to not bother her but it's difficult...Should I see a psychiatrist instead are they better equipped to handle treatment resistant schizophrenia?
C'est la première nuit que je passe sans la clozapine j'etait a 50mg le matin et 200mg le soir pendant 1 mois et demi et depuis 1 semaine je suis passé a 50mg matin et soir puis 25mg matin et soir. J'ai eu des sueurs froides toute la nuit, j'ai beaucoup transpiré, il est actuellement 10h du matin, je ne l'ai pas pris hier soir et j'avais pris 25mg hier matin. Je fais ça sans que mon médecin le sache car si il le sait je dois retourner a l'hôpital. Je sais que c'est risqué mais j'en peux plus des effets secondaires, même a 25mg matin et soir c'était horrible, je n'ai aucune émotions, ni motivation, ni plaisir c'est insoutenable. Il est actuellement 15h30 de l'après-midi et je suis petit a petit en train de reprendre conscience des choses autour de moi, le monde me paraît moins plat, mais je n'ai toujours pas retrouvé mes emotions. J'ai les pensées moins plate aussi. La soirée c'est bien passée j'ai bu un peu d'alcool et j'ai eu l'impression d'avoir des émotions. Je vous tiens au courant. Donnez moi vos témoignages.
Hey r/schizophria If you're located in the greater Melbourne area in Victoria, Australia and interested please click the link or scan the QR code. https://redcap.link/persist_EOI
(English is not my first language)
Ive been on clozapine since September 2025, in the beginning the side effects effects was sedation , drooling and constipation. And also randomly falling and involuntary muscle movement
It wasn’t until February this year I , for the first time in my life I experienced epilepsy, GTK to be exact. First time it lasted 5 minutes, I got a brain scan he neurologist said it wasn’t anything .
Fast forward to mars it happened again first was 20 minutes , the last time happened in april and it lasted for 1 hour. Biting my tongue , peeing myself. I went to the hospital as soon as it happened. Thats when they found out by taking EEG , that it was epilepsy.
I started on 312,5mg I am now on 287,5mg. Tapering of 12,5mg each time.
I haven’t experienced any withdrawal symptoms yet , I take zolpidem for sleep.
I used to take clozapine for 6 years, until 1.5 years ago when my doctor and I decided to stop it. after that, my life has been a huge mess. hospitalization after hospitalization, overdoses, voices, psychotic episodes, depression, hypomania, etc etc. now I'm in the psych hospital once again, and the doctor said he doesn't know what to do with me anymore, so we have to start clozapine again. he did say that it has to be my own decision.
I had time to think. my boyfriend and my mom both say that I should start it. I kinda think the same, but the voices don't like the idea. today I told a nurse that my decision is to start clozapine again. the doctor just came to tell me that we're starting clozapine tonight.
I'm a bit scared though. the weight gain scares me, the tiredness scares me, the drooling, the bloodwork, the heartache, I mean everything scares me. but I don't want to live like this anymore. this is not a life. I want my life back, and if clozapine is the answer, I think I have to go with it.