I'm an HCM patient and I built a free iPhone app for tracking medications, episodes, and cardiology reports
Hey r/HypertrophicCM,
Long-time lurker, first real post. I'm 34, diagnosed with HCM a few years ago. Like most of you, my life since diagnosis has been a mess of medications, echo reports, palpitation notes, and trying to remember what happened over the past six months when my cardiologist asks "anything new?"
Paper notebooks got lost. Notes app got cluttered. Screenshots of echo reports buried in my camera roll. Every appointment, I showed up scrambling.
I looked for an app that actually understood HCM. Nothing existed. General health trackers don't capture what matters for cardiomyopathy: LVOT gradient, wall thickness, ejection fraction, episode triggers, medication adherence in context. Symptom-only apps miss the document side. Document storage apps are just photo albums.
So I built one. It's called HCM Companion.
What it does: Medication tracking with reminders and one-tap "taken" logging. Episode and palpitation logging with duration, severity, and triggers. Document vault for Echo, ECG, MRI reports with HCM-specific structured fields. A timeline view that pulls everything together by date. A "doctor visit report" feature that generates a clean summary you can hand to your cardiologist before appointments.
What it isn't: No ads. No data selling. No account required. Everything stays on your phone. Not medical advice, not a replacement for your cardiologist, just an organization tool.
The core app is free. There's an optional Pro tier for advanced insights (trigger pattern analysis, weekly summaries, formatted reports) but the main functionality is fully usable for free.
I'm not a developer by trade. I'm a patient who got tired of being disorganized about something this important. This is version 1 and I'm actively improving it based on feedback, which is the actual reason I'm posting.
If you try it, I'd really value your thoughts. What's missing. What's confusing. What HCM-specific feature you wish existed. This subreddit has the exact expertise I need to make this app actually useful for our community.
iPhone only for now. If there's enough Android interest I'll build that next.
https://apps.apple.com/tr/app/hcm-companion/id6762368597?l=tr
Thanks for reading, and strength to everyone here.
Edit (8 days later): Wanted to add an update since a few of you asked about the medical accuracy side. After this post I showed the app to my own cardiologist at a routine appointment. He looked at it carefully and offered to help develop the educational content. So procedure explainers (echo, MRI, ICD, myectomy, septal ablation) and medication info will be added gradually with his review. The tracking and journaling side is the same, that's still patient-driven. Just wanted to be transparent about how the medical content is being built since it's a fair concern.
Also, to the people who asked about Android: I hear you. It's the most requested thing since launch. I'm working on it but can't promise a date yet, doing it solo. Will post here when there's news.
To anyone who downloaded it: if it's been useful, an App Store review would genuinely help. Even one line helps other HCM patients find it.