r/Lymphoma_MD_Answers

Hi, I'm (48F) in remission, 3 months post G-CHOP for follicular that had likely transformed to DLBCL. I just had a DEXA scan and the results look pretty bad. Osteoporosis in my spine and ribs (?), hips have osteopenia, very low muscle mass...chemo put me into menopause as well so I'm sure the loss of estrogen isn't helping things. I'm doing an exercise program through the cancer center so I'm lifting weights twice a week and walk every day. I'm wondering if anyone else had these results, and whether they were put on medication for bone loss. And also, which doctor led this effort? Oncologist? PCP? Obgyn? Thanks!

I was diagnosed with SLL (Small Lymphocytic Lymphoma) in October 2023.
I’m pretty sure I had it at least 4-5 years before I was diagnosed, as I had large lymph nodes on my neck for a long time, but just never thought of asking my doctor about them when I had my routine check ups.
After seeing the Oncologist, he was okay with me to “wait & watch” as my lab numbers were on the low end.
Last winter (2025) I was sick quite often with colds & sinus infections that I just couldn’t get rid of.
May 2025 I started on Brunkinska.  After being on Brunkinska, I’ve had amazing results with my lab numbers & MRI.
No serious side effects, just some pinpoint sized red dots (petechiae) on my legs & arms and some occasional bruising.
Since going on Brunkinska almost a year ago, my WBC & Lymphocytes and all lab numbers have been in the normal range since November 2025. My latest (done May 2026) MRI and lab work are looking really good.
Just wondering if anyone that has taken the Brunkinska has stopped using it after their blood work & MRI have improved and if so, what results have you had since going off Brunkinska?
I’m meeting with my oncologist next week & would like to discuss the possibility of stopping the medication, but I’m somewhat hesitant stopping the medication as I do not want my SLL cancer to flare up.