r/Lymphedema

Is this lipedema or lymphedema?

What does this sound like?

Just wondering if this is worth bringing this up with my doctor and I could see a lymphatic specialist could help with this or if I’m legitimately hallucinating.

This all started last summer when I went on an alcohol bender. I was really scrawny at the time. I woke up one morning and saw that my legs immediately had non pitting edema. It was rapid and acute swelling. Checked my liver and kidney function and those are fine. It has been persisting ever since despite sobriety. My legs never look the same daily. Some days they look larger than others. It fluctuates. They begin to ache and burn and itch when I move around too much without compression stockings. Weird bruises that show up. Cellulite is very evident on the back of my thighs. It always gets worse when I stand up when I wake up in the morning. There is so much pooling that I have dependent edema upon waking. Not to mention the cuffing that is present when I move around all day long and come home. I’ve heard alcohol is a mast cell liberator. Mast cell issues and lipedema apparently have a lot of overlap together.

I guess I am just trying to ask and see if alcohol could possibly unmask lipedema. I know for some women it gets unmasked during puberty. But I have been having many symptoms of it and don’t want to waste my doctor’s time. I am not searching for a doctor. I just want to know if this even worthwhile to even pursue. Thank you.

I should point out that I do have hyper mobility and the swelling in my legs/thighs are always symmetrical. I also can do the toe pinch test, too.

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u/Starline29 — 10 hours ago
▲ 3 r/Lymphedema+1 crossposts

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u/Bitter_Cod5731 — 5 days ago