r/Hematology

my MCV level has been ranging from 104 to 102 and is now at low 103. My doctor referred me to a hematologist who ran other tests and determined it was not a B12 folate deficiency in his opinion. I do drink wine so he asked me to limit it and I did see a decrease in a point or two, but it seems to be around the 103 level although I have not completely eliminated alcohol. By reducing alcohol, it went down a point or two but now he wants me to get a bone marrow biopsy to rule out anything serious. He said he doesn’t think it is but once we do that, then I can go back to not stressing about this level. It seems very invasive and I don’t want to go through it unless it’s necessary so I’m considering getting a second opinion from another hematologist. This is the only level that is not in the normal range so I am just concerned this could all be overkill.

I’ve had my blood test checked when my twitching started, around 3 months postpartum. 6 months prior to that I had ferritin levels of 9, and was out on supplements.

I just went through the rabid hole again and found out that ferritin levels are usually higher in ALs patients, along with transferrin saturation and lower transferrin. It matches my results. I’ve also read that itching is a symptom in those patients and I have these crazy itching on my jaw without rash. I’m very scared, I can not live like this. This is just adding up…and leads me to diagnosis which I’m even scared to go to check to the doctor, and waiting is crazy here in Canada. I can’t take care of my baby anymore…Anyone knows how to interpret these results, is this maybe just iron replacement from supplements, because I never had doctor tell me the results, I’ve just got them online and my naturopath said it looks like iron replacement, but copy was not sent to the doctor and I never got advice of what can cause it.

I’m very scared, I don’t know how to survive tonight…