r/Glaucoma

Specifically with damage to the optic nerve?

Not from macula or retinal pathology.

He's being seen by a doctor.

His retina is not detached and his macula is fine.

Just the nerve cannot be judged.

They cannot see into his eye because of a mature cataract and fibrotic membrane over his small constricted stuck pupil from inflammation.

Because he cannot see anything aside from grey hazy smokey vision he is worried that maybe it is what he will see after they operate.

So here I am asking for those with severe glaucoma what it is they see or what their vision is like.

Is nothing but grey possible only from nerve damage?

Asking for a loved one.

Thank you.

I know glaucoma is treatable but I’m still scared of it and personally I think it’s worse than cancer. I would really appreciate if someone could share their personal experience with glaucoma, how long they’ve been diagnosed and how much vision they’ve lost

I went to my eye doctor about six months ago, and I failed the visual field test. And by failing it, I mean that I couldn’t see anything. It was the most stressful test I’ve ever done. They made me look at a dot, and then there were the squiggly lines that would appear but I wouldn’t be able to see most of them. I feel like I couldn’t do well on the test because I was doing it without my glasses and my pupils were dilated. As someone with -10 myopia and -3 astigmatism, these tests are very hard for me to complete without any correction like glasses. Is there anything I can ask for them to accommodate my poor vision? The last test ended with me in tears and a referral to a glaucoma specialist at the hospital, which is tomorrow lol…. I feel I might have done better if things weren’t so blurry!

I have developed a glare in my field of vision after LPI procedure in both eyes. I know this can sometimes be permanent but my research is telling me it is possible it will go away in time? I didn’t notice it until about 2 weeks after my procedure in my right eye and now it’s bothering me constantly. Anyone have this problem and it eventually went away? I’m only 27 so I really would like to not have this for the majority of my life

So I know this sounds ridiculous but I just got prescribed Latanoprost for eye pressures. My eyes are super light blue and the doctor informed me my eyes could possible turn brown and that is irreversible if it happens. She did say it’s rare but has anyone had light blue eyes turn brown? I love my color and I know in the greater scheme of things my vision is more important, but it still scares me.

Does it helps your glaucoma or lat least lower your IOP?

it seems that wedge pillow has some side effects https://www.reddit.com/r/Glaucoma/comments/1fr07x1/comment/lpf0qzh/?utm\_source=share&utm\_medium=web3x&utm\_name=web3xcss&utm\_term=1&utm\_content=share\_button 'wedge' pillows can kink the neck arteries reducing blood circulation which is bad (unless, the shoulders are fully engaged on the pillow) https://www.reddit.com/r/Glaucoma/comments/1mob7xq/whats\_the\_correct\_way\_to\_sleep/ wedge & stacked pillow use has a HIGH RISK of neck crimping (impeding blood flow, reducing oxygen perfusion to the retina, NOT GOOD)

So i Have lazy eye since birth and I see very blurry from one eye like Really blurry(cannot be fixed with glasses) I think it has caused my VFI to be worse than it should be. What should I do about it?

I found out today I might have glaucoma, a high possibility. I have developed irreversible damage to my optic nerve, with a fast progression. I’m 26 years old.

Did anyone get diagnosed at an early age?
And are there people that started with a rapid progression but with meds have got better?
And do you have any useful tips that help you with symptoms?

I got diagnosed with ocular hypertension at 18 last October on my first visit ever to the ophthalmologist. I went because I was having bad headaches. My readings were 30 and 29 and they put me on latanoprost. My corneas were also very thick(both ~588). No optic nerve damage at all or vision loss. I also was on Zoloft at the time, and there have been studies that show that the medication can cause high pressures. I’ve been off Zoloft since this March and been to the eye doctor 3 times since October and my readings have been under 21. I don’t feel like I need to be taking the drops anymore. I also want to join the military when I graduate college and the ocular hypertension is a disqualifying factor. How do I go about telling this to my doctor and letting her know I want to stop? I respect her so much and don’t want her to think I am undermining her professional opinion. Thanks.

Do your eyes water after putting in your glaucoma (mainly Cosopt PF genetic) drops? I keep my eyes lightly closed for 3 minutes, then wipe. And then I wash my eyelashes and eyes about 30 minutes later because my lashes feel stiff. Anyone else experience this?

Is there anyone who had cornea transplant on congenital glaucoma eye which have had surgeries previously for controlling pressure. What is the success rate and how long did it last in those eyes? Please let me know.

Next week I do another field of vision test on top of the one I did last month. Being told this is specific to check for my ability to have enough of a degree of vision to drive. Also, they are doing one specifically for how much vision is missing from the center of my vision. Its getting hard to track text in paragraphs, hard to find my cursor and I can almost not see the crisshairs in my rifle scope anymore due to the hole in the field on my right eye getting bigger.

For those who have gone through this, any advice on how to adjust or what tools they have found to better adapt to work and life? Left eye has most the center but a big empty triangle missing coming from the outside. Right eye is mostly gone except the top left quadrant.

I have no public transportation for getting to work. Biking is probably more dangerous than driving. I am worried about any more progression making it even more difficult to read reports for work.

Is just seeing nothing but grey your symptom?

Asking for a friend.

Thank you.

I have had the diagnosis of glaucoma since 2022. Have been avoiding laser surgery but now my ophthalmologist is too scared to dilate my eyes because of possibility of me developing acute angular glaucoma (or whatever it’s called—I’m sure I’m using the wrong terminology lol sorry about that).

The worst my IOP has been was 25 / 27, which isn’t that bad. With latanoprost it’s been averaging 15 / 17. But I’m getting the laser surgery next month because, even though it’s very mild right now, due to my iris shape anything could happen.

Getting an iridoplasty and I’m so scared. I’m an artist. My eyes are so important. Please, if anyone has had this procedure, share your experiences? I’ve been crying ever since I scheduled the appointments. I just want to make the right decision

Hi. I’m 55 years old was diagnosed with pigmentary glaucoma in March and I have surgery scheduled in July for the AHMED tube shunt in my left eye. I have lost 30% vision in that eye and eye drops (3 kinds, each day) and that horrible oral medicine aren’t lowering my eye pressure under 30.

If you have had this type of surgery, can you let me know what your personal experience was? Maybe some things that I can calm down about or prepare for or just be aware of? I am super nervous. I have surgery scheduled on a Tuesday, and then a follow up the day after on a Wednesday, and a follow up three days after that on a Friday and another follow up the week after surgery on a Monday and I’m guessing that hopefully all is well and I will only be out of work for two weeks? No idea.

hi all,

got my eyes checked today. my eye pressure is 25, 26. It was about the same last year when I was 19, i’m 20 now. My mom has glaucoma which worries me, she only developed it way later on in life but I’m scared as to why my eye pressure is so high at such a young age? I’m told to just monitor it every year but I’m wondering if I should get a second opinion? Does anyone else have any experiences similar to mine?

Hi all, I’m considering taking 1mg of Nicotinamide Riboside to see if it can possibly restore any of my partially dead optic nerves, my right eye is in bad shape, OCT density of only 46 so I think it’s worth a shot.

Anyone have brand recommendations? I saw they’re sold all over amazon but it seems sketchy because there’s so many brands and idk how the manufacture quality is for all of them.

I was just put on latanaprost 3 days ago today in the morning my eyes were red then after about 10 min it’s pink. I was reading that preservative free is better? and protects the cornea better than the regular ones? should I ask my dr to put me on the preservative free ones or what’s the big difference ?