Persistent lifelong livedo reticularis with (self diagnosed) Raynaud's syndrome. Is this all it is, or do I need to talk to my doctor about further testing?
I'm a 29 year old female and have had livedo reticularis as long as I can remember. I always thought it was relatively normal (even tho I was bullied in school for my weird purple knees) bc I have no pain and it hasn't hindered daily life. I have recently been looking into this bc others have voiced concerns. This led me to understand the name for the purple netting on my legs but I believe it is also Raynaud's.
Main symptoms:
- purple knees and net pattern in legs, intensity increases and decreases with temperature but never fully disappears
- no matter the temperature I can draw a smiley face on my knee that stays white for a solid 30 seconds before returning to completely purple (or red/purple if overheated)
- knee cap area complete numbness, happens randomly but always happens on long drives, sometimes accompanied with sciatic pain in hip/butt, pins and needles and burning sensation as soon as feeling returns
- fingers and toes extremely cold sensitive, easily turn purple and/or white, once warmed up become red with painful burning/swollen sensation, hardly ever a normal color when they are it is brief (toes are waaay worse than fingers tho)
- pinky toes are always purple and easily go numb, randomly tho a pinky toe will be white while others are purple - doesn't happens as much in fingers
- fingers are generally always the same color, but sometimes one or a few will feel cold or numb when the rest aren't
- I also bruise easily but am not anemic (idk if applies)
I have been googling but haven't really found a solid answer. Most things say it's probably an underlying something. But I don't have any worrying pain or lumps or blood clots and all that. I'm not the type to spiral into "omg it's cancer" so I came here to see if I can get any kind of answer.
From what I've read, I probably can't get an answer without having my doctor do a bunch of blood tests. Buuuuuuut if I can circumvent that with advice here I'd be very greatful.