r/CerebralPalsy

Hi there,

I just had my birthday on 4/9 (now 29)and wanted to know as you age in your mobility wise that parents could understand that when you were a kid and a teenager and in your early twenties that mobility wise wasn’t an issue.

I recently been having health issues with my hearing that led to me having CI surgery and had vitamin b and d deficiencies my vitamin b is fixed but I’m working on my vitamin D deficiency still. I also recently got diagnosed with insomnia.

I can spend a good portion of walking around Disney now but when I was younger I was able to walk around with no problems. I’m beginning to think that renting a ECV for me to continue to have fun is an nuisance for them and them asking me to workout or take a walk around somewhere that’s longer than what my body can tolerate is difficult but doable when I have energy but I took two naps today and had a bit of Coca Cola and coffee and I’m still tired. But I don’t think that as a adult child with cerebral palsy that parents understand that it’s not that we choose to be tired more and relying on mobility aids for assistance it’s so that we know our own limits and what helps us achieve quality of life to be able to know how to do things better in the long run.

So what do you wish parents can understand about cerebral palsy and understanding pushing limits physically?

Basically what it says on the tin. I haven’t met very many people with CP so I don’t know if I’m extremely short because I lost the genetic lottery or if it’s a common symptom of people with CP and/or premature births (born almost 2 months early here!)

I’m only 5’ tall (152cm). I like to say 5’0.5”, but I’m not sure if that’s actually true lol.

I will say that my parents are both kinda short (mom is 5’2” and dad is 5’9” — he always said he’s short for a guy but I wasn’t sure if that was true or if he just bought in too hard to the idea that the ideal man is 6’ tall, men, feel free to weigh in), but being tall also runs in our family (my mom’s dad was like 6’9” and I have some taller female relatives too), so I don’t know if I’m small because I was doomed to be this way regardless or if the CP contributed too.

I thought for a long time that it was because I drank like 3-6 cans of Mountain Dew a day in middle school (I stopped growing at 13), but I’ve since found out this is a myth. Probably wasn’t a good idea to do that regardless though lol. I do not do this anymore don’t worry.

Anyone else have cracking when they straighten their back

Please upvote i need a lot of advice

I 23F I’m really really really bad at spelling. This is a huge problem because I am a journalist. No matter how much I try to edit, feels like 50% of the time I spell something wrong. Was wondering if this was just a me thing or if other people had issues. I am not saying all people with cerebral palsy are bad at spelling obviously- I was just wondering if there could be a correlation. I know it’s not dyslexia because I was tested in school.

Any advice would be appreciated !