u/xl_slurpee

Just got a pelvic CT - it's May-Thurner Syndrome

Symptoms began 2.5 years ago. HF and superficial veins bulging with purple spider veins in between. Veins get worse with gravity - standing or sitting for more than 15 seconds make them bulge out and pool with blood, only relieved by laying on my back or walking outside in the cold. Tried pelvic floor physical therapy. It helped a tiny bit, but the HF always came back 10 minutes later. Alpha blockers and muscle relaxers didn't do anything either.

After 2 years of arguing with a urologist that didn't give a shit, I finally messaged my primary care doctor and demanded a CT or MRI of the pelvis. They gave me the CT with contrast and set me up with consultation with an interventional radiologist an hour later.

He said he's pretty sure it's May-Thurner Syndrome. He wasn't too confident about anything, but that's because this is so rare in men; there just isn't enough data to say anything with certainty. He said he's done this procedure on a couple dozen men, and all of them have had at least some improvements in their symptoms.

The only treatment is a stent in the vein, which scares me. Anyone had this procedure? How did it go and what were the results?

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u/xl_slurpee — 2 days ago