Hey All,
I’m not a frequent reddit user so I apologize if I’m not super clear in my opening post in the way others might be, I’m really just looking for perspective as everything I’m seeing online seems to be fairly extreme. I (33, M) just got told that a mass in my right shoulder they removed and believed to be cystic actually had a 5.3cm pleomorphic sarcoma tumor in it.
I had the spot on my back, close to my shoulder blade, for about 3-4 months before it got removed. My body is prone to cysts and I’d been told the spot was either just that, or at worst a lipoma. Eventually it got to be annoying enough that I scheduled the surgery and got it done. I don’t think I or even my surgeon expected anything back from the biopsy so it came as a complete shock.
The good news is they can get me back in ASAP to reopen the spot and remove more tissue, and it sounds like they caught it early, but I also am not sure if I’m in the clear until I get a PET scan. I’ve been reading online since then very morbid survival rates and other information, so I’m really just hoping for a reality check from others who have gone through it or have family or friends that have. How did it go? How worried should I be? Thank you all in advance for any insight and to stop me from doomscrolling.