u/thatcrazywriter5

▲ 8 r/endometriosis_corner+1 crossposts

What are the dangers of not having excision surgery?

I’m positive I have endometriosis despite not having a diagnosis yet. My MRI didn’t show anything because I have metal hardware in my back that interfered. I’ve been blown off by two doctors, and am seeing two more this summer with the hope that at least one will listen to me.

But I have muscular dystrophy and am afraid to have surgery again (I’ve had multiple for other reasons). Primarily because the anesthesia can affect my diaphragm.

I’m pretty sure I have bowel involvement and possibly bladder involvement, and think my diaphragm and lungs have been impacted. A recent CT scan showed a diaphragm abnormality and a partially collapsed lower right lung (both of which are new and were not present a couple years ago).

So…what are the risks of not getting surgery? Would it be better to risk it and have stuff removed rather than not getting it and possibly risking my organs? What’s the likelihood that not getting excision surgery could cause severe organ damage?

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u/thatcrazywriter5 — 5 days ago