u/that_swiftie1989

how do you deal with it? /my story

shit post but i just don’t understand how im supposed to even exist like this. i’m literally just laying in bed crying right now at fucking like 1 am bc my back hurts so bad for no reason and there’s nothing i can’t do about it. laying on the heat pad isn’t doing shit and i have school in a couple hours.

so how. how do i do it how do i just live like this for however long because we don’t even know if this doctor is right bc i don’t really think he is?

fyi im 15

basically i have constant back pain and leg weakness and non constant joint pain (and they all started at different times with the back pain starting the earliest which was like 2 years ago when i was 13) the rheumatologist i saw a couple weeks ago said its caused from laying around too much and not doing like any sports or anything (which doesnt make any sense bc i know a lot of people who lay around like i do and no one has anything like this) and bc apparently i hyperextend my knees and have flater feet.

i think he like actually diagnosed me with AMPS (amplified muscleskelotol pain syndrome) but like to me that doesn’t make sense. yes not moving around can cause things to become like stiff but why would it cause all of these things instead of just like one area?

bro literally said that i just need to slowly start exercising everyday like doing 5 mins of running for one week and then 10 and blah blah blah and that if im still having pain after exercising everyday for 30 minutes for a month straight then i can like come back. i just got a treadmill the other day finally which is like $300

that’s like the end of the doctor influence bc i haven’t seen really anybody bc we just don’t have the money and it takes a lot of time to figure out where to even go.

i just don’t get how to live like this for yk however long (if the doctor guy actually is right then like only like 2 months hopefully) but still like i’m 15 years old. i want to walk and bike around my neighborhood with my friends without like dying in the process. i just want to live life not in pain like everyone else my age does (probably) and yk it’s not like this is genetic where my family has had the same stuff (my mom possibly has MS or fibromyalgia, my dad has had several work related injuries and had to do like pt and stuff and PKD)

the people in my life believe me at least but my stupid sister still thinks i’m being dramatic and lying about how bad it is (she’s like 13 ik but it still hurts yk)

idek anymore i need to try and sleep sorry for my rambling

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u/that_swiftie1989 — 8 hours ago