u/syzria

Hello! I’m not sure if this is the place to be posting something like this, but here I am.

In the beginning of April I noticed an extra blurry part of my vision that I couldn’t blink away. I told my parents because I know my mom had also experienced RRD so I wasn’t totally unfamiliar. I also knew that being super nearsighted wasn’t helping (-12.25 L, -9.50 R). So we made an appointment to check it out, at this point it had grown bigger and darker, but I wasn’t totally convinced because I could still partially see out of it. The optometrist diagnosed me with lattice degeneration + new symptoms and referred me to a retinal specialist. Made another appointment for a week later, and by this point I knew it was getting too big. The first thing the doctor says to me is “So, how long have you had this retinal detachment?” As me and my mom are sitting there in shock, they’re shining their bright lights and talking with other doctors. Doctor tells me I have stickler syndrome and that I’m lucky both of my retinas aren’t detaching. I’m scheduled for scleral buckle, laser retinopexy and a gas bubble.

I am scared shitless.

The surgery went well and the pain was minimal. My post op looked good too, my eyes didn’t really ever feel itchy or scratchy, and the eye that had laser done had healed in a little over 3 days. I’m prescribed prednisolone and antibiotics. The first few days were good, no major migraines or pain. But after a few days I began seeing little flashes of this amoeba looking thing? it would be followed by a migraine (I’ve had migraines all my life but never this frequent) and this has been happening almost 5 times a day every day since. On my second post op I had an eye pressure of 45, so they put me on diamox (now I can’t take aspirin). And I’m pretty sure the dehydration is just making them worse.

I’m incredibly grateful and happy I can see again and if ocular migraines is what I have to endure to be able to see I am okay with that. I’m just here asking for help because never in my life have I gotten multiple migraines a day. A few of these migraines have made my vision incredibly blurry. I do know that my retina is still doing good and attached from my last visit so I don’t think it’s an actual retina issue. (For reference I’m a little over 3 weeks post op.)

I’m sorry this is long, I don’t post on Reddit often. But I beg of you for advice.