u/susumn

▲ 4 r/ThyroidEyeDisease+1 crossposts

Steroids vs Tepezza round 2: Opinions needed!

Hey i’d love to hear anyone’s experience with steroids for TED? I am being recommended for either 3 months of weekly steroids or my 2nd round of Tepezza. I feel very guilty as after my second round goes- I had a medical burn out and stopped taking my thyroid meds even though I FULLLYYYY know better. I have a different care team who I feel really great about and a strong sense of purpose for getting better. I am very worried about the effects of steroid use. I didn’t hate Tepezza my first round. I did have tinnitus but it has since gone away. My original care team did not do an audiology test so I do not know what my baseline was but I feel *mostly* okay in the hearing department. I am getting married in 6 months and i’m feeling very self conscious all over again. I sometimes wish I was fine with my appearance and would get over it but that day hasn’t happened yet.

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u/susumn — 2 days ago