New to the pacemaker world and struggling.
I just got a leadless pacemaker implanted on 1/1/26. Long story short I was nearly passing out, originally told it was “panic attacks” and when I almost passed out again a month later, I advocated for myself to get a cardiac work up. I am a 32y.o. F, ICU nurse, at a hospital that specializes in cardiac care. The Monday before Christmas 2025 I receive multiple frantic phone calls/messages to see a cardiologist immediately. Zio patch said “high grade AV block.” Turns out it was a Mobitz 2 with RBB. A week later I went to work feeling awful, my coworkers walked me to the ER, and I got admitted. Spent 4 days in my own hospital. Everything happened so fast that I didn’t have time to process what was happening. I’m now 4 months out, have had multiple adjustments, and feel every paced beat. I’m symptomatic with heavy pacing, my EP is fully aware and I’m redoing the Zio patch and have a stress test the end of this month.
I’m massively struggling with going from being a completely healthy person who just lost 52 lbs within the last 2 years and in the best shape of my life, to needing a pacemaker with no reason why (genetic testing in the works). I don’t know anyone my age who needed a pacemaker and have nobody in my shoes to really talk to. I know I should be grateful that intervention was done so quickly and I have an amazing doctor I know on a personal and professional level, but I cannot help being very sad about my situation. I was hoping there may be other people close to my age (and bonus in the Bay Area, CA) that I could talk to.