Joint Pain Caused By Biologic?
I’m not sure if anyone else has experienced this but… I started Tremfya at the end of last May and at most two weeks after, I started experiencing intense pain in my lower back and sides. I’ve had MRIs, x-rays, ultrasounds. Crohn’s specialist said it isn’t my Crohn’s, recc’d I go to my PCP.
My PCP was on maternity leave so I saw someone else. He referred me elsewhere after I took anti-inflammatories and prednisnone (predinosone my beloathed). Did physical therapy for two and a half months and that didn’t help plus my insurance refused to give me more visits. Then pain management basically gave up on me. Then I went to rheumatology and insurance refused to approve an MRI because I had an approval from
my pre-colonoscopy MRI I let expire. Somehow that was for the same area??? Y’all, is your ileum in your pelvis??
Just got the news after my rheumatologist asked the radiologist to look into an MRI I did last July. No inflammation in my hip bones. I could’ve told her that. She then said “Oh I did some research and Tremfya can cause joint pain, go talk to your GI. Bye!” No follow up, no next steps for rheuma. I have a telemed with my Crohn’s specialist next Tuesday, which turns out she can do! I’ve been going to the city to see her for A YEAR and she can do telemeds!
All this to say, I’ve searched here and seen that joint pain is common with Crohn’s. I can’t even tell if this is specifically joint pain as I have a tough time observing my body and identifying problem spots. After my CD symptoms popped up, I would’ve just went on with my life if it wasn’t for my mom saying I needed to see a gastro. That’s a whole other, very embarrassing story.
It’s been nearly a year, the pain has spread. Everyday, something below my neck hurts and usually multiple spots at that. My knees, some part of my torso, a shoulder, the bottoms of my feet, etc.. I’m 25, so it’s really scary and demoralizing. No medication has worked and it feels like all the doctors I’ve seen are going to give up on me. If it was the Tremfya all along… well, why didn’t the person who prescribed it clock that? I went to her first after all.
Just anything helps, a common experience, advice. I’d appreciate it :)