Daughter needs help
My daughter has been 6 weeks in Ami-10mg - we tried 20 mg but it made her get worse pains for 2 days so I took it back down to 10-
The burn is being helped by the 40 mg Prilosec
The stabbing and cramping is helped as needed by Bentyl
And zofran is supposed to help the nausea but it doesn’t- the only thing that brings it down from level 10 is Reglan . Which I don’t want her to take often.
So OBVIOUSLY the Ami isn’t working bc of how much other stuff she still needs to take/
She also has ibs d +c
Always pains n nausea after eating
And now she’s supposed to start lexapro or Zoloft for the anxiety she now has and I’m terrified of her being on another medication
The motility doc at Stanford said they couldn’t see us til October
She also has “pots” symptoms that started when the stomach pains started. I’ve been trying for 3 months to get her checked for MALS n MCAS n SMAS and AAG
Stool study shows leaky gut, couple parasites , possibly SIBO not confirmed so we cut out inflammatory foods
I’m depressed as hell watching my 15 year old go through this - this is not living 😞