Liver Disease and CF
So, I recently had an ultrasound to see if my liver is in good enough shape for Alyftrek, and it looks like that won't be happening as the test showed Heterogenous echogenic appearance of the liver parenchyma, consistent with chronic liver disease.
I'm making an appointment with a GI specialist so we can get a better perspective of what we're looking at... but I'm definitely pretty deflated. I'm cutting alcohol, which is fine. I'm not very reliant on it, but my health has been so good since getting on Trikafta. It feels like a step backward, and just another way in which I need to deal with this disease that never stops coming at you.
Wondering if anyone has experience dealing with liver disease from CF, and if there's any advice you have.