How do you deal with work?
I was diagnosed in the summer of 2024 after a lip biopsy. It's been hit or miss on finding treatments that work. Pills, supplements, and infusions without getting any real results. I ended up going to Mayo in March 2026, but they didn't provide any additional information, it was a wasted 18 hour round trip drive. We were quite disappointed with them.
But anyways, from the middle of December to the middle of February, I was in a constant flare up. Then in February, I got Influenza B, after I got over that, I felt the best I've felt in a long time. Well now it's starting to come back into it. I started getting the fatigue and unable to concentrate the afternoon of 4/20. I took half a vacation day yesterday afternoon, but I still feel the same today, 4/22, and now I'm getting muscle and nerve pain.
What does everyone do about their job? I've asked doctor's about it, and I've asked our HR team about it, but I can't get any straight answers. HR wants me to fill out an FMLA form and use that, but it's unpaid, and I can't go without getting paid. As I'm typing this I see that it sounds like I want to get out of work, but that's not the case. As everyone knows there's good days and bad days, but I can't keep taking vacation time because I'm having a flare up. I'm currently trying to get through it, but I work in a fast paced, short staffed, office setting. So, me missing work or not being able to keep up is creating a snowball effect on my workload.
How does everyone else handle managing their symptoms and their job?
Thanks