Hi all! I am most likely switching my care to the migraine clinic at UCSD or UCSF. I'm not totally certain which is the better choice but both the neurologists I inquired about could see me around July/August and it's all in-network so it basically comes down to the experience. Do any of you have experience at either of these clinics and might recommend one over the other? Thank you so much!
Hi all! I am most likely switching my care to the migraine clinic at UCSD or UCSF. I'm not totally certain which is the better choice but both the neurologists I inquired about could see me around July/August and it's all in-network so it basically comes down to the experience. Do any of you have experience at either of these clinics and might recommend one over the other? Thank you so much!
Hi! I'm curious if any of you have never actually had a headache (ever, with any of your attacks)? Like all the auras (sensory, dysphasic, brainstem, hemiparesis), but no actual headache ever? I'm not sure how atypical this for HM. Thanks!
Hi all, I'm currently seeing a neurogeneticist who specializes in genetic ataxias as it looks like I may have been misdiagnosed (or maybe under-diagnosed?). He said he feels it's likely I have some form of Episodic Ataxia but is not ruling out Familial Hemiplegic Migraine. I've been diagnosed with VM for almost 4 years with multiple "weird auras" (same for my parent) that have been worsening over the years, which eventually lead to me getting sent to the neurogeneticist. Now I'm second-guessing everything. I really, really thought this was VM the entire time. I'm now going to get repeat-expansion testing for SCA6 and SCA27b (which the doctor said is very likely to be negative thank God) and then I will get whole exome sequencing to test for Episodic Ataxia and Familial Hemiplegic Migraine. Currently feeling rather freaked out but also hopeful to get some concrete answers.