u/raeurae

Hey guys,

I (26F) was diagnosed with POTS around twoish years ago w/ a TTT and have been managing symptoms since my diagnosis. I have been taking ivabradine for about a year and a half.

Usually my symptoms are just dizziness/fast heart rate, but for the past 2 months I have been having reoccurring persistent episodes of nausea that will send me straight to bed for several hours, multiple times a week. Sometimes this occurs with a migraine and stomach cramping.

GP suggested cyclic vomiting syndrome and prescribed sumatriptan for the migraine, however it doesn’t address the nausea. Zofran doesn’t help, phenergan seems to work occasionally (?).

These sort of episodes seem to happen a few times a year (last year ER dr told me I had ‘allergies’ and sent me home 💕), but this one has been going on since the beginning of April, and I really just want to eat a meal and not be miserable or scared after the fact.

(1) Does anyone else experience these bouts of extreme nausea (2) How do I make it less miserable (3) What’s the best way of describing these episodes to a doctor? Do I start keeping a food journal and notes????