u/princessa-xoxo

Stuck on where to go next

Hey all,

I’ve been unwell for 3 years now since my late teens. I’m in the UK so have had to turn to private with limited funds. I believe most of my symptoms are MCAS. Headaches, nausea, fatigue, stomach pain, diarrhoea, constipation, acid reflux, dizziness etc. I’m currently on a H1 and H2 blocker by my MCAS doc, but my diet is still extremely limited. I’m really scared to be honest, I just feel like no one knows how to help me. I’ve tried so many things (like vitamins, mast cell stabilisers, LDN) but I react to everything and my symptoms MASSIVELY flare. I just don’t know who to turn to. Surely there must be a way to get a better quality of life, even if only slightly.

Thanks

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u/princessa-xoxo — 2 days ago

Chronic illness and Gut Test

Hi,

I’ve been unwell for 3 years now with fatigue, nausea, headaches, alternating between constipation and diarrhoea, food reactions - MCAS, stomach pain and lots more. It all started after EBV and lots of antibiotics. It’s destroyed my life and I spend most of my time at home due to my symptoms.

I saved and finally had a gut test done and got some results back.

Previously, I’ve seen so many doctors and all of them have no clue what to do or have gaslighted me. I’m in the UK.

Does anyone know where I can go from here? I’ve got limited money due to how unwell I am, but really want to improve my quality of life.

Many thanks.

u/princessa-xoxo — 5 days ago