Trying to switch from BCG to Pembrolizumab in Ontario
Male 47yo high grade urethral/prostatic carcinoma Had 4 TURP/TURBT in the last 10 months really quick recurrence with complications in between (bleeding and getting clogged catheter). After my last TURP/TURBT had issues with catheter clogging while recovering at the hospital I was already in extreme pain when they inserted the new thicker new catheter I went into chock. Now I'm due for BCG but my urethra is extremely tender. Even with double shot of numbing gel once the catheter is around 8" inside I get uncontrollable pain. Tried twice with no success and now I have almost daily nightmares about catheter.
I'm exhausted this whole thing is screwing with my mental health as well. At this point I want to just stop treatment all together.
I was hoping to try Pembrolizumab instead my urologist said I would not be eligible and would cost 100s of thousands for it but could arrange a referral with an Oncologist. But when I replied that I would like to see an oncologist the dr. Stopped replying.
I don't know where to go from here. I was wondering if anyone could point me in the right direction in trying to find an oncologist in Ontario maybe my family doctor can send a referral and I can try to get it covered somehow.
Any help is greatly appreciated.