Hi all - thanks in advance to all in this community.
In short - in November 2024 I was having continued heart palpitations and a weekend of awful fatigue, nausea and vertigo. That past April, my metabolic panel was normal. I got my first-ever abnormal calcium reading right after this weekend long episode.
Fast forward - in mid-March 2026 I’ve experienced and passed a kidney stone, by then I hit a new low of 6+ months of fatigue and brain fog and general exhaustion and attitude/memory changes, along with heart palpitations and elevated blood pressure, and deep bone pain throughout my hips/SI joint and ribcage. Other symptoms persist (hair loss/general malaise that’s hard to describe/period and urinary issues) but “stones, bones, moans and groans” are all very well happening.
I have an endo appointment at the end of this month (planning on asking for repeat labs and DEXA), an endo surgeon consult in mid-July, and trying to get another local specialty parathyroid center virtual consult for July but they need to review my labs to accept me.
To the labs - they are very much in a grey area where I’ve had trouble advocating for myself and I feel like I’m on the wrong track - PCP and urologist are going with “well, the kidney stone was just bad luck and low citrate, corrected calcium is good / the pain/fatigue could be fibromyalgia?” But I’ve seen a couple testimonies similar to mine here - especially similar stories where the users wound up in the kidney stone subreddit months after posting here.
I don’t want to be sick (if it’s not this then that is information!) but I feel so ill and this seems the closest thing. 34F. (Range included). Norman app says I am low risk/not likely.
4/2026: Ca 10.2 (8.7-10.2), PTH 23 (10-65) (fasting first thing in morning), D not taken - PCP couldn’t be convinced to add it. Albumin 4.5. Noticed that Calcium and PTH both went up a hair with eachother from lab 5 weeks prior.
4/2026: 24hr Urine Ca 130 (30-200 mg/24h), potassium magnesium phosphorous sulfate urea nitrogen and citrate were all below lowest range at this time
3/2026 (post-stone): Ca 10.1, PTH 17, D 35 (urology’s lab range not provided but was told “normal”) (fasting except tons of water, early afternoon) Albumin 4.8.
8/2025: Ca 10.1 (8.7-10.2) (fasting mid-morning), Albumin 4.6.
11/2024: Ca 9.9 (8.7-10.2), PTH 43 (10-65) Vitamin D, 25-Hydroxy 15.5 (30-100) (late morning, fasting) Albumin not taken. Ionized Ca 5.2 (4.5-5.6).
11/2024: Ca 10.9 (8.7-10.2) (early afternoon but can’t remember if fasting). Albumin 4.9.