Heart transplant than 2 years later kidney transplant
I was born with a congenital heart defect transposition of the great arteries. I had open heart surgery at 18 months. Then I lived a fairly healthy life. I got pregnant multiple times I have one living daughter and have given birth twice. I went to school for nursing. I have had continuous multiple infections. Went into heart failure. Waited on the list for over a year and received my heart transplant in December of 2019 and then in June of 22 I got a kidney transplant. Which my husband donated but he was not a match so we did a paired kidney exchange. It was an eight-person chain.
I have been having for many many months years even where my body will feel okay and then I have a flair of sorts where my body hurts everywhere all of my joints are aching I'm exhausted fatigued dizzy sometimes have a sore throat and I'll low grade fever. And then other times I can be okay for like a week or two. I suffer from chronic fatigue. I work as a nurse for a little bit post kidney transplant and I just picked everything up and I was so fatigued that I could not handle it. I have been out of work. I am struggling with the cyclicative issues I seem to have. So what I mean is since my heart transplant I have not really gotten much stamina back. I am better than I was pre-transplant in some aspects and other aspects about the same if not worse. I would not trade it for the world because I wouldn't be here. But I have these symptoms and they just really don't know why I'm having these issues. They said sometimes just people don't farewell on the meds. It really does seem like a cycle. I also have a flare of sorts with excessive stress. If I have lack of sleep. If I pick up any kind of cold or virus and if I pick anything up that lingers for weeks to maybe 2 months.
I have also had bouts of dizziness that is from orthostatic and then other times the diseasiness is not from a blood pressure change at all. I also get frequent headaches. When I feel stable for good for lack of a better term I feel that way. When I feel poorly it's overwhelming to me and feels a like it triggers me going back into heart failure and b I feel like I'm crazy sometimes.
I'm also struggling mentally. I have anxiety that is managed with meds and meditation yet it has been flared up recently.
Anybody else have kind of a story like this there's more to it but that's the gist