Just broke my 1.7 years seizure free streak :((
Hi! I was diagnosed with epilepsy in spring 2024 as a 26F, no family history of epilepsy. After being put on the correct medications that worked for me (keppra 1500mg/lamotrigine 100mg daily) since fall 2024; I’ve been seizure free until yesterday. I had a breakdown seizure in my sleep but was a very different seizure than my previous 5.
I was recently put on fluoxetine 40mg (got to 40mg slowly from 10mg to 20mg then 40mg) for anxiety and mirtazapine 7.5mg as a sleep aid. I had reached out to my neurologist office and they confirmed fluoxetine was safe for me. Since starting these medications about 2 months ago, I starter to have dejavu for the very first time since my last seizure in fall 2024. I just thought i needed to give my body/neurons time to adapt to new medication and I was going to be fine as long as I always took my epilepsy medications which I have NEVER missed a dose since fall 2024.
This seizure was a bit more controlled in the way that I was emotionally aware but couldn’t control my body. My partner was sleeping with me when it happened and was able to aid me very quickly. I was able to come back to consciousness 5-10mins after seizure. I didnt have a raging headache afterwards and didnt have to sleep it off which previous seizure had made me sleep for 7hrs+.
Im very sad that I no longer have a long seizure free streak since my partner & I want to try for a baby at the end of this summer. But also feeling very grateful that I have a good case of epilepsy. I drink moderate alcohol, im a daily stoner, I do edibles, I can enjoy clubs & concerts with no worries about lights, etc… but im bummed that I needed the anxiety medication and sleep aid at this moment of my life and it might be the reason for my breakthrough seizure. Im going to stop the sleep aid for now since my anxiety is controlled and Im sleeping better, but I hope I can stay on fluoxetine since it has helped my anxiety.
Any experience with this anxiety medication or sleep aid?