u/not_ya_bruv_m8

🔥 Hot ▲ 96 r/covidlonghaulers

Built a tool to help diagnose root cause of my long covid symptoms

After being diagnosed with SIBO & MCAS for the first time in 2022 following a bout of COVID, I've spent the last 3 years feeling like each new diagnosis, test, and doctors appointment was like starting over. In theory each of these should be new data points that help progress toward definitive set of diagnoses and symptom relief- but reality is a lot messier. Physicians are limited in time, by the quality of their notes. I'm limited by my own knowledge and honestly desperate to find answers and relief.

So I built this to help diagnose myself, or at least narrow what could be wrong. It treats chronic symptoms as a probability distribution across different mechanisms in the body that could cause them. With each data point, AI helps update the probability of each, narrowing the set as more is learned. I've found this to be really helpful in peeling back all the layers of the onion behind my SIBO/chronic-GI symptoms.

Sharing because it's been helpful to me and I thought others might find it interesting or inspiration for their own journey!

u/not_ya_bruv_m8 — 3 days ago
▲ 1 r/SIBO

Built a tool to help diagnose root cause of my SIBO

After being diagnosed with SIBO & MCAS for the first time in 2022, I've spent the last 3 years feeling like each new diagnosis, test, and doctors appointment was like starting over. In theory each of these should be new data points that help progress toward definitive set of diagnoses and symptom relief- but reality is a lot messier. Physicians are limited in time, by the quality of their notes. I'm limited by my own knowledge and honestly desperate to find answers and relief.

So I built this to help diagnose myself, or at least narrow what could be wrong. It treats chronic symptoms as a probability distribution across different mechanisms in the body that could cause them. With each data point, AI helps update the probability of each, narrowing the set as more is learned. I've found this to be really helpful in peeling back all the layers of the onion behind my SIBO/chronic-GI symptoms.

Sharing because it's been helpful to me and I thought others might find it interesting or inspiration for their own journey!

u/not_ya_bruv_m8 — 3 days ago