u/noregrets08

▲ 10 r/UCTD

Has anyone experienced an improvement in their labs but a worsening of symptoms? I am at my wits end. My symptoms have progressively worsened but my labs have improved. My most recent lab tests show a negative ANA, negative ribosomal p protein, and a normal CRP. My ESR has come down drastically.

However, my symptoms have worsened. I’ve had to triple my Gabapentin dose to manage the nerve pain. I’m sleeping 12+ hours. My hands are experiencing more joint swelling.

I don’t know what to do at this point and I am just so tired. I want answers, I want more symptom management, but my labs aren’t reflecting whatever is happening.

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u/noregrets08 — 8 days ago