u/nikita606

Never heard of EOE before January. 31 year old son had trouble swallowing. Went for endoscopy and had >50 eosinophils at the GE junction and a stricture requiring dilation at the same location. No eosinophils at other locations in the esophagus. He wanted to do 6FED, but doctor insisted he do PPI, so he did the 6FED diet AND took 40 mg Protonix per day. Second endoscopy and second dilation in March. Eosinophils at GE junction dropped to 6. Still no eosinophils in the rest of the esophagus. We don't know if it was diet or PPI. Doctor now agreed to test for triggers. My son introduced egg and dropped the PPI. (Still taking Pepcid twice a day to control rebound effect and help with any GERD.) Next endoscopy is Friday. We are so hopeful that the numbers do not jump up. Doctor thinks they will, and we won't know if it was the PPI or the egg. This whole process is just so difficult. My son has been doing 6FED since early January. He has not gone out to eat at all. Kind of living like a hermit, hoping to control this with diet and avoid drugs. If others have gone through similar process it would be nice to hear about it.

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u/nikita606 — 12 days ago