Is it very hard to get insurance to cover the the genetic test for Myotonic Dystrophy Type 2? Share your experience?
Hi
I'm a 33F whose 70M dad just got diagnosed with it (no genetic testing for him but based on symptoms). Sadly I have symptoms like muscle/joint pain and weakness/fatigue and I am looking to pursue genetic testing for myself.
I think having a diagnosis could prove helpful in some respects but at the same time, I am worried about the psychological impact of finding out I have this rare disease that will quite possibly shorten my lifespan and make me lose functional capacity early. It's a tough pill to swallow 😥. Also, I know my health comes first and this is probably stupid to even think about, but I worry how it will affect my romantic prospects (I do want to pursue marriage again) and how many men will say rude things or run as soon as they find out I have DM2. Sigh.... It just feels very heavy right now.
Tell me your experiences with getting the genetic testing done?