How to live with Crohn’s disease?
I have been struggling with stomach pains all my life, and just last week was I diagnosed with Crohn’s Disease after a colonoscopy.
I was handed two brochures about Crohn’s, but have not been able to debrief with any doctor or person that has it/knows of it yet. Whenever I tell people about it they have never heard about it, and I am struggling with even explaining what it is and how it affects me. I have been feeling a bit lost and alone, and through I might reach out here:)
I know that question is a bit broad, but I don’t know where to start to look into it all. Gut health, diet, medication, flare patterns, lifestyle, medical follow up etc.
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So far I have been on two checkups and one colonoscopy, and I am going to have an ultrasound on my small intestine. Results so far are:
High calprotectin value
A fistula (might need surgery? I don’t know)
Inflammation in the lower part of my small intestine and upper part of my large intestine