Massive Localized Lymphedema
Hi all! I have lymphedema in my left leg (thankfully it’s under control in my lower leg), BUT I have a massive localized lymphedema mass hanging on my inner thigh above my knee. This thing is an absolute NIGHTMARE for my mobility. My leg is so heavy it’s hard to lift, the mass is constantly smacking the back of my right knee and almost knocking me over when I walk, and it’s painful as hell in general. I’ve lost almost 100lbs (current weight is 412lbs) so far. I know it will need to be surgically removed, but obviously it’s just not safe at my size yet. I was curious if anyone here has any experience with having a MLL removed? Specifically on the inner thigh?
(Also just a note- I do have a doctor’s appointment coming up to discuss this with my doctor, but it’s not for another month, so I just thought I’d ask here while I wait for my appointment!)