TLDR: furrows/rings in esophagus and eosinophil count of 80 at GE junction but told it is most likely just acid reflux, despite already being on a PPI for 9 months.
I went to the GI doc a year ago for gnawing stomach pain that was worse on an empty stomach. They put me on 40mg of omeprazole and just told me to keep taking it when the symptoms didn’t go away entirely.
After 9 months of this and some new symptoms (turned out to be SIBO) I insisted on an upper endoscopy.
The endoscopy notes stated “Linear furrows and concentric rings seen in the mid to distal esophagus likely consistent with eosinophilic esophagitis,
biopsies taken at 25 cm to confirm eosinophilic esophagitis.”
The pathology notes for the GE junction said “INTRAEPITHELIAL EOSINOPHILS ARE INCREASED (80/HPF). REFLUX
ESOPHAGITIS AND EOSINOPHILIC ESOPHAGITIS SHOW SIGNIFICANT HISTOLOGIC
OVERLAP IN THE DISTAL ESOPHAGUS. IF THIS PATIENT'S SYMPTOMS DO NOT REGRESS
AFTER ACID REDUCTION THERAPY, EOSINOPHILIC ESOPHAGITIS MAY BE A
CONSIDERATION”. The section on the middle esophagus only noted reflux related changes.
The same doctor that did the endoscopy then said probably acid reflux, let’s try a PPI. When I pointed out that I had been on one for 9 months already, he said ok let’s try a different brand.
The different brand was arguably even less helpful. I have since weaned off PPIs and eliminated FODMAPs for the SIBO and dairy, and am noticing great improvement so far.
I’m curious, does the suggestion that the eosinophil count and esophagus changes were related to acid reflux make sense to you? It seems odd to me, especially considering the rings noted during the endoscopy, but maybe it is more likely reflux since my entire esophagus wasn’t affected? Then again I see people posting here diagnosed with lower counts than that.
I’ve done the elimination diet entirely on my own since my GI has seemingly no interest in encouraging diet changes, only medicine, so I am already considering changing doctors.
edit: I don’t eat fish/shellfish or nuts to begin with, and I happened to not have eaten any eggs recently—so I’ve eliminated 4 of the 6, just not wheat or soy.