Convincing someone they have FND
As the title suggests, my husband is not convinced he has FND. He's been diagnosed by three different neurologists after an exhaustive, years long workup involving labs, advanced imaging, swallow studies, endoscopy, laryngoscopy, and at least 4 or 5 EMGs over the last couple of years. One diagnosing physician is an ALS specialist at MGH and the other is a movement disorder and FND specialist, also at MGH. He also is diagnosed with cramp fasciculation syndrome.
He is currently doing neuro PT and speech for his weakness, swallowing issues and muscle tension dysphonia (falls under the FND spectrum). He is referred to OT and I'm trying to find a psychotherapist who treats FND while he waits on an appointment with the FND clinic at MGH.
He feels gaslit and like doctors are telling him it's his own fault. I want to support him, but I also don't agree there's some other disease process going on that's hasn't been detected by top neurologists in the country.
What convinced you you had FND? What should I do? I already have two autistic kids to care for and a full time job as a nurse caring for other people all day and he's on disability and I just have bad caregiver burnout. I don't blame him for any of this, I just need help!