u/lilysv_22

Hi! I’m 28, was recently diagnosed with hEDS and I have my first appointment with a rheumatologist during the week. I won’t lie… I’m really scared. My joint instability has gotten really bad the last 2 months, especially my knees and I’m terrified the dr won’t know how to deal with hEDS or maybe won’t believe me cause “I’m young”. I haven’t found any that specializes in EDS cause there aren’t many resources for it in my country.

Every scenario is going through my mind and I’d love to know if you have tips for how to go about the appointment. if maybe I should list my symptoms to make it more understandable or idk, anything would help. Thank u!