u/lexicona

Has narcolepsy affected your confidence or self-esteem over time?

I've noticed that dealing with constant tiredness, brain fog, and uncertainty has made me feel less capable and dependable. While I'm trying my best, I can't help but think about the times I fail or contrast myself with others who seem to have endless energy. Those who have been through this longer, how did you keep or regain your confidence? What helped you stop thinking that your self-worth depended on how much you got done or how much energy you had?

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u/lexicona — 2 hours ago

Even with medication, I still crash hard in the afternoon and feel mentally useless. How did you adjust your routine to function better with narcolepsy?

Even though I take medicine, I still crash badly every afternoon and can't think straight for hours. No matter how busy I was earlier in the day, I can't seem to keep my mind on the task at hand, stay motivated, or think straight. I've tried pushing through, changing how much sleep I get, and moving around my jobs, but the afternoons are still hard for me. How did people who live with narcolepsy change their daily lives to deal with these falls? What changes did you make that actually helped you work better instead of fighting your body all the time?

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u/lexicona — 1 day ago

Has narcolepsy ever made you feel unreliable or guilty, even when you’re trying your best? How do you deal with that mentally?

I carefully plan my days and take my time, but sometimes I have to stop plans, slow down, or need more rest than I thought I would. It bothers me because I care about my duties and the people around me, but I always feel like I'm letting someone down because I can't plan. How do people who have been through this for a long time deal with the mental and emotional parts of their guilt? What helped you change the way you thought about it or be nicer to yourself?

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u/lexicona — 4 days ago