Guys I’ve been battling my bladder for 2 years now and I don’t know what to do next. Between over production and bladder spasms it has been hell always having to stop what I’m doing to clean up over and over again.
I’m T9 incomplete and 2 years ago I realized that sometimes I’ll go days where I produce 300-400ml anytime I cath (every 4 hours) and then it spikes and I’m producing 500-800ml of clear urine. This spike happens especially at night and is very unpredictable causing me to have multiple accidents a night. Then also some days my bladder decides it wants to spasm just cause and I’ll have accidents back to back within the time in between each cath (4 hours)
I’ve tried Oxybutynin, gemtesa (insurance stopped covering it), and myrbetriq to no avail. I’ve done the urodynamics test (“looks fine” my doctor said). I couldn’t find a urologist specialized in SCI in my area so it’s been hard to really get a clear diagnosis. Now they want me to try another drug that I’m almost positive won’t do a damn thing.
Please help!